Here we go AGAIN

SO J was back to dr yesterday after spending wednesday and thursday sticking his fingers in his ears (and on the odd occasion mine too) and it appears he has lots of pus and wax built up so the dr couldn't tell if the ear drum was perforated or not. :( SO back on a stronger lot of antibiotics and panadol and nurofen and night time painstop to help him sleep. My poor bubby screamed himself to sleep today :( Just feel so helpless. He is pale and has gone off his food and his head feels hot. So not fair. I told the pharmacist I was going to get his GP to print off a list of how many times he's been on the antibiotics for ear infection and he looked on his computer and said since June this was number 4 so in 3 months the poor little guy has had 4 lots of antibiotics for ear infections. So now the family is on the countdown to 22nd October to see the ENT and hopefully grommets or an answer as to why he is getting these infections so often.

Term 4 nightmares

Last year was a horrible term 4 for B he just couldn't stop the anxiety wouldn't go to school lots of fighting hitting kicking hurting running jumping etc etc so called a psych and told her about what was happening. She said she was concerned because now we have a pattern forming (last 3 years in a row term 4 was a nightmare) I call last years term 4 B's low point he got to the stage of band aides on every finger and toe to the point of not showering for 2 weeks and wearing gloves and socks to bed. Even if I went through during the night to remove these horrible smelly disgusting items so I could wash and dry for the morning it just didn't work get them mostly off and he'd wake. SO I was more then a little surprised when in our PSG meeting we didn't even look at term 4 anxieties and the teacher wasn't aware of it (even though one of his teachers was the special needs lady last year) So I told his teacher in brief what had happened and what I did and who said what and she couldn't believe it and said to me at the end of the day what ever is best for him is what is going to work for us so let me worry about here and you worry about home. PHEW what a relief but again I am questioning how much of a stat B is at the school. Principle's attitude is he needs to be at school he needs to be involved but he can't always cope and he will always gravitate to the younger children. So I am nervous about next term coming along. I am treating like any other term but only time will tell and after 3 years of this nightmare I think I have a right to be.

Term 4 nightmares

Last year was a horrible term 4 for B he just couldn't stop the anxiety wouldn't go to school lots of fighting hitting kicking hurting running jumping etc etc so called a psych and told her about what was happening. She said she was concerned because now we have a pattern forming (last 3 years in a row term 4 was a nightmare) I call last years term 4 B's low point he got to the stage of band aides on every finger and toe to the point of not showering for 2 weeks and wearing gloves and socks to bed. Even if I went through during the night to remove these horrible smelly disgusting items so I could wash and dry for the morning it just didn't work get them mostly off and he'd wake. SO I was more then a little surprised when in our PSG meeting we didn't even look at term 4 anxieties and the teacher wasn't aware of it (even though one of his teachers was the special needs lady last year) So I told his teacher in brief what had happened and what I did and who said what and she couldn't believe it and said to me at the end of the day what ever is best for him is what is going to work for us so let me worry about here and you worry about home. PHEW what a relief but again I am questioning how much of a stat B is at the school. Principle's attitude is he needs to be at school he needs to be involved but he can't always cope and he will always gravitate to the younger children. So I am nervous about next term coming along. I am treating like any other term but only time will tell and after 3 years of this nightmare I think I have a right to be.

Term 4 nightmares

Last year was a horrible term 4 for B he just couldn't stop the anxiety wouldn't go to school lots of fighting hitting kicking hurting running jumping etc etc so called a psych and told her about what was happening. She said she was concerned because now we have a pattern forming (last 3 years in a row term 4 was a nightmare) I call last years term 4 B's low point he got to the stage of band aides on every finger and toe to the point of not showering for 2 weeks and wearing gloves and socks to bed. Even if I went thru during the night to remove these horrible smelly disgusting items so I could wash and dry for themorning it just didn't work get them mostly off and he'd wake. SO I was more then a little surprised when in our PSG meeting we didn't even look at term 4 anxieties and the teacher wasn't aware of it (even though one of his teachers was the special needs lady last year) So I told his teacher in brief what had happened and what I did and who said what and she couldn't believe it and said to me at the end of the day what ever is best for him is what is going to work for us so let me worry about here and you worry about home. PHEW what a relief but again I am questioning how much of a stat B is at the school. Principle's attitude is he needs to be at school he needs to be involved but he can't always cope and he will always gravitate to the younger children. So I am nervous about next term coming along. I am treating like any other term but only time will tell and after 3 years of this nightmare I think I have a right to be.

The joys of pets

We have a beautiful grey bunny in our family (he looks like thumper from bambi beautiful white feet and grey all over just so handsome. B named him Mario. Mario came to our family when he was only 6 weeks old and he and his friend peach (after princess peach yep guess who had a mario obsession at that time)were wonderful and friend. Poor Peach ran away one night after we had friends over and their children opened the cage and left it open. (Peach was very flighty not as homey as Mario. SO now we have the one. He is very spoilt gets lots of cuddles and inside visits and is very very loved. Especially by B who will sit and pat him for ages. We have had birds and even tried chicks but nothing is like a rabbit. We dog sat while my parents went away and we thought great will see if a dog is for us but no one else wanted anything to do with the dog and it was with much relief he went home. I never wanted a rabbit why would I they are feral and smell and crazy and all they do is eat lettuce and carrots. NOT TRUE I researched alot about rabbits when he first arrived and They are so cool. I have alwasy been searching for a cat the same as one i had just to cuddle and play with and be part of the family not some snobby animal who will not interact with anyone especially with the kids. I honestly say now if your looking for a pet for your young family a rabbit is the best idea.

It's only autism

Hi,my name is Sam and my oldest son is diagnosed high functioning autism spectrum disorder. That's how I remember introducing myself at a workshop I went to with my mum.I felt embarrassed and walked away at the end of the day thinking IT'S ONLY AUTISM I CAN DO THIS. It may seem like a strange remark to some and to others it is careless but I take great comfort in knowing at the end of the day IT IS ONLY AUTISM. We have traveled a long road with B I will be honest and when he is full on he is full on but things could be so much worse. My son can read extremely well (well and truly above grade 1 standard) he is excellent at maths (again above his level) and for the first time in 12 months we are seeing a therapist (i have had phone contact with his psych but he hasn't had to go anywhere to anyone. Now why make this comment is probably a question that comes to mind. It is because I feel so blesses B isn't at daily therapies he can talk he can feed himself he can talk to me (some days wish he couldn't ROFL)he can dress himself he can play. There are so many kids out there who are lucky to even have one of these qualities. I have met a HUGE variety of people in the autism community and all with kids at various stages of the spectrum most with something else with the autism. Epilepsy, downs syndrome, irritable bowel syndrome the list goes on and on. These people struggle day in day out to get much help and my goodness they deserve it. B's paediatrician has always said she thinks i was on a winning formula when I decided to treat B like anyone else. I guide him when he struggles but at the end of the day I am preparing him for the world not expecting the world to prepare for him and again while some might agree I think if he can be prepared to cope with the world he can grab the bull by the horns and do what ever he decides he wants to do WHY NOT? So please excuse me when I say my son just has autism because at the end of the day it is the truth

Reflection

So I have been a full time mum for best part of 7 and a half years. I started uni at the start of the year and thought Fantastic something finally that revolves around me I am Sam there not B's mum or J's mum or anyone else just Sam. AND i loved that feeling. I am now wondering if I have done this at the wrong time. I am so busy with J being sick and B being feral (getting to the fun time of year with him)next year I will have 1 in 3 yr old kinder 1 in 4 yr old kinder and 1 in grade 2. I wonder some days what I have gotten myself into. Should I have stayed away when A and I lived apart for awhile instead of going back? Where would I be now if I did? Then I feel guilty because i love my kids so much i can't explain. Then there is the heart ache. My beautiful closest friend in the world lost her baby she was having before christmas 2 years ago nearly. I didn't even know i was having J and one day there he is (that was a hard thing telling her) but she is his god mother and thankfully like an aunt to the kids anyway but she should have had her planned wanted loved very much baby! :) My kids are the most important ting in the world to me and I would do anything for them. J has been sent to us just like the others for a reason. Life has been tough i am not going to hide it and there are days where i want to walk away from Adam or kick him out and do it alone but I don't because I have a feeling he wouldn't see thewm if I did and that hurts I know it does but also why throw something away just because of alittle disagreement? How do you think things work if you are willing to give it up without trying. People are starting to believe EVERYTHING in this world is disposable and often you hear oh well if that doesn't work plenty more where it came from?? What the heck no fight for what you want if it breaks try fixing it don't just give up. OR you do create these lazy good for nothings. People today need to learn to care. Make sure your life is awesome before going and crapping all over someone else.

Where is the volume control and intelligence.

B is soo loud at the moment. It is a common sign Captain A is here to visit for a few days. He stayed the night at grandma's saturday night and when i dropped in sunday he was talking non stop and trying to get grandma grandma to play games with him. Mum said he hasn't stopped since he woke up. LOL Poor kid 4 days now on full volume and todays he's in bed with a sore throat. Not very often B is home sick in bed so it must be bad. He is amazing He can rattle off a HUGE variety of numbers and can recite his fav movies from start to end while describing all the characters and what they do. Add in the mix his lego and oh my goodness. He just fascinates me. How can one little kid absorb so much. I told school if you involve anything with avengers or interests he will just keep absorbing it. He tells me constantly about things that happened 2-3 years ago and can give you details not just what he thinks he can remember. I think our world needs to look at Autism in a different approach. No not all kids on the spectrum are like this but I think if people approached their kids therapy in the right way you'd see that even those who can't talk would be extremely clever too. The whole spectrum is just fascinating and while alot have social issues too they can be helped. I think alot of our spectrum kids are too protected but that is for another time to chat about. Next time you see a child on the spectrum take a minute to appreciate that there is alot going on in their little heads and appreciate it isn't always easy.